Policy-aware data lakes: a flexible approach to achieve legal interoperability for global research collaborations.

"title=modularity&oldid=939961252 (accessed feb 17 2020) 35 carliss young baldwin & kim b clark design rules : the power of modularity 63 (2000) 36 id at 63 37 mark d wilkinson et al the fair guiding principles for scientific data management and stewardship 3 scientific data (2016) 38 robert l grossman data lakes clouds and commons: a review of platforms for analyzing and sharing genomic data arxiv :1809 01699 [ cs q - bio ] (2018) http://arxiv org/abs/1809 01699 (accessed dec 3 2019) 39 id 40 ibm big data & analytics hub the four v' s of big data (2013) 41 a minimal standard of legal availability could be established such as a reasonable prospect of being legally aggregated and re-used 42 pisani and botchway supra note 20 at 29 43 id at 29 44 wellcome supra note 19 45 office of the privacy commissioner of canada privacy and the covid-19 outbreak (2020) https://priv gc ca/en/privacy-topics/health-genetic-and-other-body-information/health-emergencies/gd_covid_202003/ (accessed apr 5 2020) 46 while i focus on using legal metadata for providing access to data it can have other benefits such as (i) allowing researchers to search for and find legally available data; (ii) assisting regulatory bodies (such as research ethics committees and data access committees) to determine if a dataset is legally available for a proposed research use; and (iii) use as an accountability tool as it is permanently associated with the dataset facilitating communication of legal requirements and auditing of researcher compliance 47 ncbi dbgap home https://www ncbi nlm nih gov/gap/ (accessed apr 6 2020) 48 dina n paltoo et al data use under the nih gwas data sharing policy and future directions46 nat ."

"I would like to thank the funding support of Genome Canada, Genome Quebec, and the Canadian Institutes of Health Research. I would also like to thank Professor Bartha Knoppers and Alexander Bernier for their invaluable feedback on earlier drafts of this paper."