The governance of genomic biobank research in Africa: reframing the regulatory tilt.

Publication Year: 2020

DOI:
10.1093/jlb/lsz018

PMCID:
PMC8249083

PMID:
34221433

Journal Information

Full Title: J Law Biosci

Abbreviation: J Law Biosci

Country: Unknown

Publisher: Unknown

Language: N/A

Publication Details

Subject Category: Medical Ethics

Available in Europe PMC: Yes

Available in PMC: Yes

PDF Available: No

Transparency Score
2/6
0.0% Transparent
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Evidence found in paper:

"For example, see Council of Europe Convention for the Protection of Human Rights and Dignity of the Human Being with Regard to the Application of Biology and Medicine: Convention on Human Rights and Biomedicine (Oviedo Convention) (1997); Council of Europe Convention for the protection of individuals with regard to the processing of personal data 1980 (revised 2018); World Medical Association Declaration of Helsinki ; UNESCO Universal Declaration on the Human Genome and Human Rights (1997) . Ciara Staunton, Santa Slokenberga, Deborah Mascalzoni, The GDPR and the Research Exemption: Considerations on the Necessary Safeguards for Research Biobanks. 27 Eur J Hum Gen. 1159, 1162–1163 (2019)."

Evidence found in paper:

"Jantina de Vries is supported by two H3Africa awards, namely the Stigma in African Genomics award (Award Number 1 U01 HG008226-01) the IFGENERA award (Award number U54HG009790), both administered by the National Human Genome Research Institute as part of the NIH Common Fund H3Africa Initiative."

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Last Updated: Aug 05, 2025