Qualitative evaluation of the symptoms and quality of life impacts of long-chain fatty acid oxidation disorders.

"Conflict of interest statement: The authors declared the following potential conflicts of interest with respect to the research, authorship, and/or publication of this article: Rebecca Williams-Hall, Katie Tinsley, and Adam Gater are all employees of Adelphi Values, a health outcomes research agency commissioned by Ultragenyx Pharmaceutical Inc. to conduct the research outlined in this manuscript. Chloe Johnson was an employee of Adelphi Values at the time this research was conducted. Eliza Kruger and Tricia Cimms are employees and shareholders of Ultragenyx Pharmaceutical Inc. Alexandra Bowden was an employee and shareholder of Ultragenyx at the time this research was conducted."

"Funding: The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study was funded by Ultragenyx Pharmaceutical Inc. The publication of the manuscript was not contingent upon the sponsor’s approval."