Feasibility of electronic patient-reported outcome monitoring and self-management program in aplastic anemia and paroxysmal nocturnal hemoglobinuria-a pilot study (ePRO-AA-PNH).

Publication Year: 2022

DOI:
10.1007/s00277-022-05012-5

PMCID:
PMC9631592

PMID:
36326854

Journal Information

Full Title: Ann Hematol

Abbreviation: Ann Hematol

Country: Unknown

Publisher: Unknown

Language: N/A

Publication Details

Subject Category: Hematology

Available in Europe PMC: Yes

Available in PMC: Yes

PDF Available: No

Transparency Score
4/6
66.7% Transparent
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Evidence found in paper:

"Declarations Ethics and patient approvalThe study was approved by the local ethics committee (EKNZ Nr. 2019–01563) and registered under ClinicalTrials.gov (NCT04128943). All parts of the study were performed within the principles of the Declaration of Helsinki. Informed consent was obtained from all patients for being included in the study. Conflict of interestRA is an employee of Kaiku Health Ltd. The other authors declare no competing interests. Conflict of interest RA is an employee of Kaiku Health Ltd. The other authors declare no competing interests."

Evidence found in paper:

"Funding Open access funding provided by University of Basel This study received funding from a junior research grant from the University Basel, a grant from the ProPatient foundation, and unrestricted grants from Kaiku® Health Ltd. and Novartis AG."

Evidence found in paper:

"Trial registration ClinicalTrials.gov NCT04128943."

Open Access
Paper is freely available to read
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Last Updated: Aug 05, 2025