Ataxia Rating Scales Reflect Patient Experience: an Examination of the Relationship Between Clinician Assessments of Cerebellar Ataxia and Patient-Reported Outcomes.

"Declarations Conflict of InterestMichele Potashman declares no conflict of interests. Her disclosures are that she is employed by and owns shares in Biohaven Pharmaceuticals. Miranda Mize declares no conflict of interests and has no disclosures. Melissa Beiner declares no conflict of interests. Her disclosures are that she is employed by and owns shares in Biohaven Pharmaceuticals. Samantha Pierce declares no conflict of interests and has no disclosures. Vladimir Coric declares no conflict of interests and discloses that he is employed by and owns shares in Biohaven Pharmaceuticals. Dr. Schmahmann declares no conflict of interests. His disclosures are that he is site PI for Biohaven NCT03701399, NCT02960893 and NCT03952806, consults for Medavante; receives royalties from Oxford University Press, Elsevier, MacKeith Press, and Springer; and is the inventor of the Brief Ataxia Rating Scale, Cerebellar Cognitive Affective/Schmahmann Syndrome Scale, the Patient Reported Outcome Measure of Ataxia, and the Cerebellar Neuropsychiatry Rating Scale which are licensed to the General Hospital Corporation. Conflict of Interest Michele Potashman declares no conflict of interests. Her disclosures are that she is employed by and owns shares in Biohaven Pharmaceuticals. Miranda Mize declares no conflict of interests and has no disclosures. Melissa Beiner declares no conflict of interests. Her disclosures are that she is employed by and owns shares in Biohaven Pharmaceuticals. Samantha Pierce declares no conflict of interests and has no disclosures. Vladimir Coric declares no conflict of interests and discloses that he is employed by and owns shares in Biohaven Pharmaceuticals. Dr. Schmahmann declares no conflict of interests. His disclosures are that he is site PI for Biohaven NCT03701399, NCT02960893 and NCT03952806, consults for Medavante; receives royalties from Oxford University Press, Elsevier, MacKeith Press, and Springer; and is the inventor of the Brief Ataxia Rating Scale, Cerebellar Cognitive Affective/Schmahmann Syndrome Scale, the Patient Reported Outcome Measure of Ataxia, and the Cerebellar Neuropsychiatry Rating Scale which are licensed to the General Hospital Corporation."

"The authors express appreciation to the National Ataxia Foundation for facilitating patient engagement and participation in the online survey, to Jason MacMore for his assistance, and to Dr. Irfan Qureshi, Gil L’Italien and Rinchen Doma for helpful discussions. We are deeply grateful to the patients and families who dedicated their time and effort to the successful completion of this project. Supported in part by the National Ataxia Foundation, the MINDLink Foundation, and Biohaven Pharmaceuticals."