Health Surveillance in a Down Syndrome Specialty Clinic: Implementation of Electronic Health Record Integrations During the Coronavirus Disease 2019 Pandemic.

Journal Information

Full Title: J Pediatr

Abbreviation: J Pediatr

Country: Unknown

Publisher: Unknown

Language: N/A

Publication Details

Subject Category: Pediatrics

Available in Europe PMC: Yes

Available in PMC: Yes

PDF Available: No

Transparency Score
3/6
50.0% Transparent
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Evidence found in paper:

"All phases of this study were supported by an internal grant from the Quality and Safety Mini-grant program at the Massachusetts General Hospital for Children. The QI group had no role in the design and conduct of the study. S.S. has received research funding from 10.13039/100014371LuMind Research Down Syndrome Foundation to conduct clinical trials for people with Down syndrome within the past 2 years. She serves in a nonpaid capacity on the Medical and Scientific Advisory Council of the Massachusetts Down Syndrome Congress, the Board of Directors of the Down Syndrome Medical Interest Group (DSMIG-USA), and the Executive Committee of the American Academy of Pediatrics Council on Genetics. B.S. occasionally consults on the topic of Down syndrome through the Gerson Lehrman Group. He receives remuneration from Down syndrome nonprofit organizations for speaking engagements and associated travel expenses. B.S. receives annual royalties from Woodbine House, Inc, for the publication of his book, Fasten your seatbelt: A crash course on Down syndrome for brothers and sisters. Within the past 2 years, he has received research funding from F. Hoffmann-La Roche, Inc, AC Immune, and LuMind IDSC Down Syndrome Foundation to conduct clinical trials for people with Down syndrome. B.S. is occasionally asked to serve as an expert witness for legal cases in which Down syndrome is discussed. B.S. serves in a nonpaid capacity on the Honorary Board of Directors for the Massachusetts Down Syndrome Congress and the Professional Advisory Committee for the National Center for Prenatal and Postnatal Down Syndrome Resources. B.S. has a sister with Down syndrome. Y.H. has received education-related funding (Autism Speaks Autism Care Network for teaching in autism ECHO),internal funding, and philanthropic funding for clinical support (Nancy Lurie Marks Foundation). Her daughter has Down syndrome. The other authors declare no conflicts of interest."

Evidence found in paper:

"All phases of this study were supported by an internal grant from the Quality and Safety Mini-grant program at the Massachusetts General Hospital for Children. The QI group had no role in the design and conduct of the study. S.S. has received research funding from 10.13039/100014371LuMind Research Down Syndrome Foundation to conduct clinical trials for people with Down syndrome within the past 2 years. She serves in a nonpaid capacity on the Medical and Scientific Advisory Council of the Massachusetts Down Syndrome Congress, the Board of Directors of the Down Syndrome Medical Interest Group (DSMIG-USA), and the Executive Committee of the American Academy of Pediatrics Council on Genetics. B.S. occasionally consults on the topic of Down syndrome through the Gerson Lehrman Group. He receives remuneration from Down syndrome nonprofit organizations for speaking engagements and associated travel expenses. B.S. receives annual royalties from Woodbine House, Inc, for the publication of his book, Fasten your seatbelt: A crash course on Down syndrome for brothers and sisters. Within the past 2 years, he has received research funding from F. Hoffmann-La Roche, Inc, AC Immune, and LuMind IDSC Down Syndrome Foundation to conduct clinical trials for people with Down syndrome. B.S. is occasionally asked to serve as an expert witness for legal cases in which Down syndrome is discussed. B.S. serves in a nonpaid capacity on the Honorary Board of Directors for the Massachusetts Down Syndrome Congress and the Professional Advisory Committee for the National Center for Prenatal and Postnatal Down Syndrome Resources. B.S. has a sister with Down syndrome. Y.H. has received education-related funding (Autism Speaks Autism Care Network for teaching in autism ECHO),internal funding, and philanthropic funding for clinical support (Nancy Lurie Marks Foundation). Her daughter has Down syndrome. The other authors declare no conflicts of interest."

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Last Updated: Aug 05, 2025