Patient perspectives on pulmonary hypertension in the United States: Burdens, expectations, and goals.

"CONFLICT OF INTEREST STATEMENT K. Braley would like to disclose that the views she has expressed are her own and not necessarily those of her employer, the Robert Wood Johnson Foundation, which was established as a national philanthropy in the early 1970s with Johnson & Johnson stock, and which is independent from the company. K. Richardson has nothing to disclose. L. Whitley has nothing to disclose. K. Werner is an employee of Team PHenomenal Hope, Inc. L. Appleby was an employee of Team PHenomenal Hope, Inc. at the time of manuscript development and is now an employee of Lutheran Hour Ministries."

"Financial support PH can result in financial burden for patients and caregivers in terms of treatment costs and their inability to work. Education for payers and policymakers is therefore needed to allow patients to access medications more easily and affordably."