Public attitudes towards genomic data sharing: results from a provincial online survey in Canada.

Journal Information

Full Title: BMC Med Ethics

Abbreviation: BMC Med Ethics

Country: Unknown

Publisher: Unknown

Language: N/A

Publication Details

Subject Category: Ethics

Available in Europe PMC: Yes

Available in PMC: Yes

PDF Available: No

Transparency Score
4/6
66.7% Transparent
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Core Indicators
Evidence found in paper:

"data sharing) were modified or taken directly from the literature and genomic websites with public-facing materials e g1825"

Code Sharing
Evidence found in paper:

"Declarations Ethics approval and consent to participateEthics approval was received from the Newfoundland and Labrador Health Research Ethics Board (Ref # 2018.221). All study methods were performed in accordance with relevant guidelines and regulations (Declaration of Helsinki). Respondents provided informed consent by reading the opening consent pages of the survey and ticking a consent box before they could begin. Consent for publicationNot applicable. Competing interestsThe authors declare no competing interests. Competing interests The authors declare no competing interests."

Evidence found in paper:

"Funding This research was supported by the Atlantic Canada Opportunities Agency, Business Development Program, St. John’s, NL, Canada through a grant to Rahman."

Protocol Registration
Open Access
Paper is freely available to read
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Assessment Info

Tool: rtransparent

OST Version: N/A

Last Updated: Aug 05, 2025