Co-design and Consultation Ensure Consumer Needs Are Met: Building an eHealth Platform for Children with Inflammatory Bowel Disease.

Publication Year: 2023

DOI:
10.1007/s10620-023-08146-2

PMCID:
PMC10635922

PMID:
37897556

Journal Information

Full Title: Dig Dis Sci

Abbreviation: Dig Dis Sci

Country: Unknown

Publisher: Unknown

Language: N/A

Publication Details

Subject Category: Gastroenterology

Available in Europe PMC: Yes

Available in PMC: Yes

PDF Available: No

Transparency Score
3/6
50.0% Transparent
Transparency Indicators
Click on green indicators to view evidence text
Core Indicators
Data Sharing
Code Sharing
Evidence found in paper:

"Declarations Conflict of interestJoseph Louis Pipicella—Crohn’s Colitis Cure Company Secretary. Edward Giles—Advisory Boards: AbbVie, Janssen; Speaker Fees: Takeda, Janssen, Nutricia, Aspen Nutritionals, AbbVie, Evolution Health, H&H Group. Andrew S. Day—Honoraria: AbbVie, Janssen and Nestle; Research Support: Cure Kids; Cure Kids Chair of Paediatric Research. Susan Jane Connor—Advisory Board participation, speaker fees, educational support and/or research support from: AbbVie, Amgen, BMS, Celltrion, Chiesi, Dr Falk, Eli-Lilly, Ferring, Fresenius Kabi, Gilead, GSK, Janssen, MSD, Novartis, Organon, Pfizer, Sandoz, Takeda, Vifor, Agency for Clinical Innovation, Gastroenterological Society of Australia, Medical Research Future Fund, South Western Sydney Local Health District, Sydney Partnership for Health, Research and Enterprise (SPHERE) and The Leona M and Harry B Helmsley Charitable Trust; Member of the Australia New Zealand IBD Consortium; Crohn’s Colitis Cure Board Member; South Western Sydney Local Health District employee. Jane Mary Andrews—Speaker’s fees, research support, Ad Boards, industry consultation within last 3 years: AbbVie, Allergan, Anatara, Atmo Capsule, Bayer, BMS 2020, Celgene, Celltrion, Falk, Ferring Fresenius Kabi, Gilead, Hospira, Immuninc, ImmunsanT, Janssen, MSD, Nestle, Novartis, Pfizer, Sandoz, Shire, Takeda, Vifor, RAH research Fund, The Hospital Research Fund 2020–2022, The Helmsley Trust 2020–2023; Crohn’s Colitis Cure Board Chair; The Gastroenterological Society of Australia Board Member; Central Adelaide Local Health Network employee. Ethical approvalThis study was ethically approved by the South Western Sydney Local Health District Human Research and Ethics Committee (HREC) (2021/ETH11378) and the University of Otago Ethics Committee (Health), New Zealand (H21/116). Patient consentPeople with IBD and Parents: A participant information sheet was displayed online prior to online consent being obtained. Clinicians: Participation was voluntary; thus, no formal consent was required. Conflict of interest Joseph Louis Pipicella—Crohn’s Colitis Cure Company Secretary. Edward Giles—Advisory Boards: AbbVie, Janssen; Speaker Fees: Takeda, Janssen, Nutricia, Aspen Nutritionals, AbbVie, Evolution Health, H&H Group. Andrew S. Day—Honoraria: AbbVie, Janssen and Nestle; Research Support: Cure Kids; Cure Kids Chair of Paediatric Research. Susan Jane Connor—Advisory Board participation, speaker fees, educational support and/or research support from: AbbVie, Amgen, BMS, Celltrion, Chiesi, Dr Falk, Eli-Lilly, Ferring, Fresenius Kabi, Gilead, GSK, Janssen, MSD, Novartis, Organon, Pfizer, Sandoz, Takeda, Vifor, Agency for Clinical Innovation, Gastroenterological Society of Australia, Medical Research Future Fund, South Western Sydney Local Health District, Sydney Partnership for Health, Research and Enterprise (SPHERE) and The Leona M and Harry B Helmsley Charitable Trust; Member of the Australia New Zealand IBD Consortium; Crohn’s Colitis Cure Board Member; South Western Sydney Local Health District employee. Jane Mary Andrews—Speaker’s fees, research support, Ad Boards, industry consultation within last 3 years: AbbVie, Allergan, Anatara, Atmo Capsule, Bayer, BMS 2020, Celgene, Celltrion, Falk, Ferring Fresenius Kabi, Gilead, Hospira, Immuninc, ImmunsanT, Janssen, MSD, Nestle, Novartis, Pfizer, Sandoz, Shire, Takeda, Vifor, RAH research Fund, The Hospital Research Fund 2020–2022, The Helmsley Trust 2020–2023; Crohn’s Colitis Cure Board Chair; The Gastroenterological Society of Australia Board Member; Central Adelaide Local Health Network employee."

Evidence found in paper:

"Funding Open Access funding enabled and organized by CAUL and its Member Institutions. The study received generous support from The Leona M. and Harry B. Helmsley Charitable Trust (Grant No. #2002-04267) and The Australian Government, Department of Education and Training: Research Training Program (RTP) Fees Offset Scholarship."

Protocol Registration
Open Access
Paper is freely available to read
Additional Indicators
Replication
Novelty Statement
Assessment Info

Tool: rtransparent

OST Version: N/A

Last Updated: Aug 05, 2025