Data quality and patient characteristics in European ANCA-associated vasculitis registries: data retrieval by federated querying.

"Competing interests: None declared."

"Funding: This project has received funding from the European Union’s Horizon 2020 research and innovation programme under the EJP RD COFUND-EJP No 825575. Crafoordska stiftelsen: 20220623 (KG and AJM). Vetenskapsrådet: 2019-00263 (KG and AJM). Science Foundation Ireland 13/RC/2106_P2 and 11/Y/B2093 (MAL). European Union’s Horizon 2020 research and innovation programme under the EJP RD: EJP-RD/I/FAIRVASC/03/2020 (K/NCB/000058) (SL, JM and KW). CSL Vifor: IIS-NA-2021-0497 (NB and MR). Fundings from the French Vasculitis Study Group who implemented and coordinated this French registry (XP and BT). DFG-project 441416480 (PL and DJ). The ADAPT SFI Centre for Digital Content Technology is funded by Science Foundation Ireland through the SFI Research Centres Programme and is cofunded under the European Regional Development Fund (ERDF) through Grant # 13/RC/2106_P2. JS is a Wellcome-HRB Irish Clinical Academic Training (ICAT) Fellow, and this work was performed within the Irish Clinical Academic Training (ICAT) Programme, supported by the Wellcome Trust and the Health Research Board (Grant Number 203930/B/16/Z), the Health Service Executive, National Doctors Training and Planning and the Health and Social Care, Research and Development Division, Northern Ireland. German Research Foundation/Deutsche Forschungsgemeinschaft DFG-LA-1339/5-1 (PL)."