Uncertain futures and unsolicited findings in pediatric genomic sequencing: guidelines for return of results in cases of developmental delay.

Journal Information

Full Title: BMC Med Ethics

Abbreviation: BMC Med Ethics

Country: Unknown

Publisher: Unknown

Language: N/A

Publication Details

Subject Category: Ethics

Available in Europe PMC: Yes

Available in PMC: Yes

PDF Available: No

Transparency Score
3/6
50.0% Transparent
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Evidence found in paper:

"Declarations Ethics approval and consent to participateThe qualitative empirical research projects on which this publication is based received a waiver of approval from the ethics review board of University Medical Center Utrecht as it did not fall under the Dutch Medical Research with Human Subjects Law.All participants in the interview studies gave written informed consent prior to participation. All methods in the interview studies were carried out in accordance with relevant guidelines and regulations of the Declaration of Helsinki. Consent for publicationNot applicable. Competing interestsThe authors declare no competing interests. Competing interests The authors declare no competing interests."

Evidence found in paper:

"Funding This research was funded by ZonMw – the Netherlands Organization for Health Research and Development (Grant No. 70–73000-98–047). The funding body played no role in the design of the study and collection, analysis, interpretation of data, and in writing the manuscript."

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Open Access
Paper is freely available to read
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Last Updated: Aug 05, 2025