Delineating family needs in the transition from hospital to home for children with medical complexity: part 1, a meta-aggregation of qualitative studies.

Journal Information

Full Title: Orphanet J Rare Dis

Abbreviation: Orphanet J Rare Dis

Country: Unknown

Publisher: Unknown

Language: N/A

Publication Details

Subject Category: Medicine

Available in Europe PMC: Yes

Available in PMC: Yes

PDF Available: No

Transparency Score
4/6
66.7% Transparent
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Evidence found in paper:

"Declarations Ethics approval and consent to participateNot applicable: this review does not require formal ethical review since it is based on available published literature and does not contain any individual person’s data in any form. Our study protocol was published on PROSPERO (Record Number CRD42020196348). Consent for publicationNot applicable. Competing interestsThe authors declare that they have no competing interests. Competing interests The authors declare that they have no competing interests."

Evidence found in paper:

"Funding This project received financial support from The Netherlands Organization for Health Research and Development (ZonMW), project number 845008701. The funder was not involved in the design or execution of the study."

Evidence found in paper:

"We systematically identified and synthesized all primary qualitative research exploring the needs and experiences of CMC parents during H2H transitions, according to the Johanna Briggs Institute guidelines for the meta-aggregative approach []. A meta-aggregation is an integrative method of qualitative synthesis designed to summarise results of qualitative research while retaining the original wording and interpretation of the outcome. Summarizing common findings produces cross-study generalizations that could lead to recommendations for action [, ]. Our study protocol was published on PROSPERO [record number CRD42020196348]. Declarations: Ethics approval and consent to participateNot applicable: this review does not require formal ethical review since it is based on available published literature and does not contain any individual person’s data in any form. Our study protocol was published on PROSPERO (Record Number CRD42020196348).: Consent for publicationNot applicable.: Competing interestsThe authors declare that they have no competing interests. Ethics approval and consent to participate: Not applicable: this review does not require formal ethical review since it is based on available published literature and does not contain any individual person’s data in any form. Our study protocol was published on PROSPERO (Record Number CRD42020196348)."

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Last Updated: Aug 05, 2025