Lived experiences of genetic diagnosis for rare disease patients: a qualitative interview study.
Journal Information
Full Title: Orphanet J Rare Dis
Abbreviation: Orphanet J Rare Dis
Country: Unknown
Publisher: Unknown
Language: N/A
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"Declarations Ethics approval and consent to participateThis study protocol was reviewed and approved by the Ethics Committee of the University of Vienna, approval number 00606. Written informed consent was obtained from participants to participate in the study. Consent for publicationThe consent to publish the results of the study was included in the informed consent. Competing interestsThe authors have no conflicts of interest to declare. Competing interests The authors have no conflicts of interest to declare."
"Funding Open access funding provided by University of Vienna."
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Last Updated: Aug 05, 2025