Integration of Patient-Reported Outcome Data Collected Via Web Applications and Mobile Apps Into a Nation-Wide COVID-19 Research Platform Using Fast Healthcare Interoperability Resources: Development Study.
Journal Information
Full Title: J Med Internet Res
Abbreviation: J Med Internet Res
Country: Unknown
Publisher: Unknown
Language: N/A
Publication Details
Subject Category: Medical Informatics
Available in Europe PMC: Yes
Available in PMC: Yes
PDF Available: No
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"abbreviations atc anatomical therapeutic chemical blob binary large object codex covid-19 data exchange compass coordination on mobile pandemic apps best practice and solution sharing epro electronic patient-reported outcome fair findability accessibility interoperability and reuse fhir fast healthcare interoperability resources gecco german corona consensus icd-10-gm international statistical classification of diseases and related health problems-10th edition-german modification loinc logical observation identifiers names and codes mdm-portal portal of medical data models num network university medicine odm operational data model pro patient-reported outcome prom patient-reported outcome measure redcap research electronic data capture snomed ct systematized nomenclature of medicine clinical terms data availability the source code of the interface component itself is available on github [ 32 ].; the helm charts and the configuration of the covid-19 data exchange platform are not open source but ehrbase [ 34 ] and fhir bridge [ 35 ] as the main components of the central platform can be used independently and are available in their corresponding github repositories."
"the app framework is available as open-source software on github [ ] and can be used and customized by anyone free of charge.; abbreviations atc anatomical therapeutic chemical blob binary large object codex covid-19 data exchange compass coordination on mobile pandemic apps best practice and solution sharing epro electronic patient-reported outcome fair findability accessibility interoperability and reuse fhir fast healthcare interoperability resources gecco german corona consensus icd-10-gm international statistical classification of diseases and related health problems-10th edition-german modification loinc logical observation identifiers names and codes mdm-portal portal of medical data models num network university medicine odm operational data model pro patient-reported outcome prom patient-reported outcome measure redcap research electronic data capture snomed ct systematized nomenclature of medicine clinical terms data availability the source code of the interface component itself is available on github [ 32 ].; the helm charts and the configuration of the covid-19 data exchange platform are not open source but ehrbase [ 34 ] and fhir bridge [ 35 ] as the main components of the central platform can be used independently and are available in their corresponding github repositories."
"Conflicts of Interest: None declared."
"The authors would like to thank all those involved in the project, university members, and industry partners, who worked together with great effort to make all of this possible within the short time frame. In particular, the authors would like to thank Dagmar Krefting and Ulrich Sax, who helped them with their expansive expertise and background knowledge about metadata and findable, accessible, interoperable, and reusable data management. The Coordination on Mobile Pandemic Apps Best Practice and Solution Sharing project is part of the German COVID-19 Research Network of University Medicine (“Netzwerk Universitätsmedizin”), funded by the German Federal Ministry of Education and Research (funding reference 01KX2021)."
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Last Updated: Aug 05, 2025