PREF-NET: a patient preference and experience study of lanreotide autogel administered in the home versus hospital setting among patients with gastroenteropancreatic neuroendocrine tumours in the UK.

"Declarations Ethics approvalThe study was performed in accordance with the recommendations of the Declaration of Helsinki and the guidelines for Good Pharmacoepidemiology Practices from the International Society for Pharmacoepidemiology. It also adhered to all local regulatory requirements applicable to non-interventional studies. The study protocol and supporting documents were submitted for National Health Service (NHS) Research Ethics Committee (REC) review via the Health Research Authority for the five UK sites. Research and development departments at participating sites issued capacity and capability statements, as a confirmation of approval, before patient recruitment commenced at the sites (REC reference: 21/ES/0021; IRAS project ID: 286528). Patient consentInclusion criteria for participants included that patients were willing and able to complete the study questionnaires in the quantitative online survey and willing and able to complete the one-to-one interview and be audio-recorded for the qualitative interviews. Competing interestsMB, KC, LD and DH have nothing to declare. MC: speaker fees and advisory board honorarium from Advanced Accelerator Applications (a Novartis company) and Ipsen MD: speaker fees and advisory board honorarium from Advanced Accelerator Applications (a Novartis company) and Ipsen. KH: Employee; Ipsen. MSK: speaker fees and advisory board honorarium from Advanced Accelerator Applications (a Novartis company), BMS, Ipsen and Novartis. CP: Employee; Ipsen. DMP: honoraria for consultancy and delivering presentations from Advanced Accelerator Applications (a Novartis company), INFAI, Ipsen and Mayoly Spindler Laboratories, and research funding to investigate the role of netazepide in gastric NETs from Trio Medicines Ltd. TS: research funding from Ipsen and Novartis, joint work projects for Advanced Accelerator Applications (a Novartis company) and Ipsen, and speaker honoraria from Advanced Accelerator Applications (a Novartis company) and Novartis. MOW: joint work projects and research funding from Novartis and Ipsen Medical writing supportThe authors thank Kirsty Walters (PhD) and Tamzin Gristwood (PhD) of Oxford PharmaGenesis, Oxford, UK, who provided medical writing and editorial support, which was sponsored by Ipsen in accordance with Good Publication Practice (GPP 2022) guidelines. Competing interests MB, KC, LD and DH have nothing to declare. MC: speaker fees and advisory board honorarium from Advanced Accelerator Applications (a Novartis company) and Ipsen MD: speaker fees and advisory board honorarium from Advanced Accelerator Applications (a Novartis company) and Ipsen. KH: Employee; Ipsen. MSK: speaker fees and advisory board honorarium from Advanced Accelerator Applications (a Novartis company), BMS, Ipsen and Novartis. CP: Employee; Ipsen. DMP: honoraria for consultancy and delivering presentations from Advanced Accelerator Applications (a Novartis company), INFAI, Ipsen and Mayoly Spindler Laboratories, and research funding to investigate the role of netazepide in gastric NETs from Trio Medicines Ltd. TS: research funding from Ipsen and Novartis, joint work projects for Advanced Accelerator Applications (a Novartis company) and Ipsen, and speaker honoraria from Advanced Accelerator Applications (a Novartis company) and Novartis. MOW: joint work projects and research funding from Novartis and Ipsen"

"Funding This study was sponsored by Ipsen. The sponsor was involved in the design of the study, analysis and interpretation of the data, and review of the manuscript."